Our stories

We are Erika and Cloe , The first days after Cloe’s birth were a bit hard…I loved that baby, but I was worried about how

My name is Kevin, I am 11 years old and I am a Poland Syndrome carrier. It affected the left side of my body. I

I’m Daniela our experience began when our second child, Andrea, was born. Our shock was great since during the pregnancy none had told us the

My name is Ilaria, I’m 22 years old and at the moment my life is running pretty smoothly. I am studying at the University to

I’m Matteo I grew up with a lot of friends and the immense love of my family who has always supported me. I have always

My Name is Luca this is my tiny story. 27 May 1969: it’s my birthday. I was born suffering from Poland Syndrome, but at the

My name is Anna, when I was 9 years old I used to sing in the church choir and I would see two girls playing

My name is Jair I’m 35 years old. I am a Poland Syndrome carrier and a founding member of Aisp.At the end of 2002 I

My name is Nicolò, I am a 24-year-old guy from Rome and shortly after my birth I was diagnosed with a rare disease, Poland Syndrome: