Our stories

My name is Kevin, I am 11 years old and I am a Poland Syndrome carrier. It affected the left side of my body. I

I’m Daniela our experience began when our second child, Andrea, was born. Our shock was great since during the pregnancy none had told us the

I’m Matteo I grew up with a lot of friends and the immense love of my family who has always supported me. I have always

My name is Anna, when I was 9 years old I used to sing in the church choir and I would see two girls playing

We are Erika and Cloe , The first days after Cloe’s birth were a bit hard…I loved that baby, but I was worried about how

My name is Jair I’m 35 years old. I am a Poland Syndrome carrier and a founding member of Aisp.At the end of 2002 I

My name is Nicolò, I am a 24-year-old guy from Rome and shortly after my birth I was diagnosed with a rare disease, Poland Syndrome:

My name is Ilaria, I’m 22 years old and at the moment my life is running pretty smoothly. I am studying at the University to

My Name is Luca this is my tiny story. 27 May 1969: it’s my birthday. I was born suffering from Poland Syndrome, but at the