OUR VISION
The association of relatives and people suffering from Poland Syndrome was founded with the aim of connecting individuals affected by this pathology in order to provide concrete help, especially in terms of information and exchange of experiences.
In many cases, due to the rarity of the pathology, families cannot have access to the necessary support that would enable them to better deal with the situation, including psychological support.
The Association aims to reach people and families of people affected by Poland Syndrome, as well as doctors and everyone who might be interested in knowing, helping and supporting the Association’s program.
OUR MISSION
The association of relatives and people suffering from Poland Syndrome was founded with the aim of connecting individuals affected by this pathology in order to provide concrete help, especially in terms of information and exchange of experiences.
In many cases, due to the rarity of the pathology, families cannot have access to the necessary support that would enable them to better deal with the situation, including psychological support.
The Association aims to reach people and families of people affected by Poland Syndrome, as well as doctors and everyone who might be interested in knowing, helping and supporting the Association’s program.
OUR CORE VALUES
Acceptance
and Listening
This is the first task that the Association accomplishes: through a dedicated service, we listen to all
those who need to orient themselves in the world of the Poland Syndrome We provide this support thanks to the qualified training of some volunteers who carry out this valuable work from the very first contact with the Association
Commitment
and Participation
The Association carries out non-profit activities and relies on volunteers who work free of charge in support of disease carriers and families in need, giving them their time, their professional knowledge, their human and interpersonal skills, promoting effective solutions to the carriers’ needs.
Support
and Assistance
OUR METHODOLOGY
Our activity is built on considering the person as a whole: Poland Syndrome represents a single aspect of the person who is seen in its healthy dimension, despite the implications that this rare disease entails. AISP promotes life quality by proposing discussion, self-questioning and game as tools which allow to overcome diversity and prejudice.
